女孩患怪病全身只剩頭部 塑料盆是她唯一的家

When Rahma Haruna was six months old, her arms and legs stopped developing. Now 19, she lives with her family in the village of Lahadin Makole, close to Kano in Nigeria.

在拉瑪·哈倫拿6個月大時，她的四肢就停止了發育。現在她已經19歲了，一家人生活在尼日利亞距卡諾不遠的Lahadin Makole。

Contending with chronic pain, she is practically immobile and spends most of her waking hours in a plastic bowl, which her family transport her around in.

伴隨着持續性的疼痛，她無法行動，一天的大部分時間只能生活在塑料盆裏，被家人端來端去。

Her mother Fadi said: "From six months when she learnt how to sit that was when it began. She didn't learn how to crawl. She started with a fever and that was it. Then stomach pains. Then her body parts like hands and legs. She cannot use any if the ache strikes."

她的母親法蒂表示："從拉瑪6個月大時，她就開始這樣生活了，那時她剛剛學會坐。她的一生都沒能學會爬行和走路。她剛開始是發燒，接着肚子痛，然後四肢疼痛，無法行動。"

For much of her life Rahma's family would carry her in her bowl, with her brother Fahad taking her into Kano each day to beg for handouts. However, last year a journalist, Ibrahim Jirgi, gave the family a wheelchair.

在拉瑪生命中大多數時間裏，她都只能坐在塑料盆裏被家人端來端去。拉瑪的兄弟法哈德每天帶她去卡諾城裏乞討。直到去年，纔有一位叫易卜拉欣·吉爾的記者給她家捐贈了一輛輪椅。

The Haruna family also experienced an upturn in their fortunes when local freelance photographer Sani shared images of Rahma on social media, which prompted an inundation of requests from strangers who wanted to help in any way they could. The family are now hoping to be offered some kind of medical support.

而在自由攝影師薩尼在社交媒體上分享了拉瑪的照片後，引發了社會各界的想對哈倫拿一家提供各種幫助的熱心人。這一家的經濟狀況纔有了好轉。這家人目前希望可以得到醫療援助。

Although Rahma has received some consultations, her condition has never been professionally diagnosed.

儘管有人對拉瑪的情況作過了解，但其病情一直未得到專業的診斷。

Fahad told reporters that he takes particular care of his sister: "I help her in many ways. Bathing her is another thing I do, and taking her out every day. I feel happy whenever I see people helping her. I like taking to our relatives. She feels happy when we visit them."

法哈德接受記者採訪時表示，他對妹妹很照顧："我在很多方面都幫助她。我還幫她洗澡，每天帶她出去。當我看到有人幫助她時，我感到很開心。我喜歡帶她去串親戚，那時她也特別高興。"

Despite her severe disability, Rahma has entrepreneurial ambitions: "I want to start a business," she said. "A grocery store and anything people buy, that is what I want."

儘管患有嚴重的殘疾，拉瑪還有着成爲企業家的抱負："我想做生意。辦個百貨商店，人們可以在那裏買到各種東西。這是我的夢想。"